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'There are many reasons why I shouldn’t be here. If you’d shown my ten-year-old self my life as it is now, he’d have been stunned, mostly because he half-expected an early death. My father, who had Marfan Syndrome, the genetic condition I have, died when he was in his mid-40s, when I was two, and the conventional medical wisdom of the time was that this was normal, almost expected.' (Introduction)
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Last amended 27 Sep 2024 06:58:48
https://theconversation.com/friday-essay-i-know-my-ache-is-not-your-pain-disabled-writers-imagine-a-healthier-world-239398
Friday Essay : ‘I Know My Ache Is Not Your Pain’ – Disabled Writers Imagine a Healthier World
The Conversation
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